NICE recommends GPs develop a national autism register

GPs could be asked to develop a national autism register to help end the ‘invisibility’ of autistic people in the health system | GP Online

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NICE has recommended the register be implemented with a new QOF indicator.

The proposal follows the findings of the Westminster Commission on Autism, set up by the National Children’s Group and chaired by Labour MP Barry Sheerman. Its report found that 76% of autistic people and parents said their GP did not make any reasonable adjustments for them or their autistic child. The report said this was an indication that health professionals may not consistently identify and make accommodations for the needs of autistic people.

NICE said a register would make autistic patients more easily identifiable to healthcare professionals in GP practices and help staff adapt their approach to suit patients’ needs.

For example, NICE said, it would allow staff to arrange for autistic children to come for vaccinations at quieter times and turn lights down for those with sensory problems.

Read the full news story here

GPs to refer patients to libraries to promote access to reliable health information

GPs will be able to refer patients with long-term conditions to public libraries from this month under a charity-led scheme to promote access to reliable health information | GP Online

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A reading list of 28 trusted books for patients with long-term conditions, stocked by all public libraries in England from this month, has been drawn up under the scheme, backed by the RCGP and organisations including Public Health England.

The books on prescription scheme for patients with long-term conditions is an extension of the existing Reading Well programme, launched by charity the Reading Agency and the Society of Chief Librarians.

Thousands of GPs already refer patients to libraries under the existing scheme, which has focused on areas including mental health and support for patients with dementia and their carers.

Report: Perfect Patient Information

Improving access to information: New PIF report – Perfect Patient Information Journey

PIF

Image source: PIF

In light of the growing move towards supporting people with long-term conditions to self-manage and share in decision-making about their care, PIF has launched a project aimed at creating a model pathway to support the ‘perfect patient information journey’ for people with long-term conditions.

The project aims to:

  • Identify good practice principles to ensure the provision of high quality information for people with long-term conditions.
  • Develop resources aimed at supporting patients, healthcare professionals and commissioners to better access, provide and commission high quality information.
  • Pilot and evaluate these resources in a clinical setting.

Read the full overview here

The full report is available here